April 2020
Internationally recognised Australian experts in the areas of human rights, bioethics and disability, have released a Statement of Concern to emphasise key human rights principles and standards that need to underpin ethical decision-making in the context of disability and the COVID-19 pandemic.
Signatories propose the following human rights principles for ethical decision-making:
- Health care should not be denied or limited to people with disability on the basis of impairment.
- People with disability should have access to health care, including emergency and critical health care, on the basis of equality with others and based on objective and non-discriminatory clinical criteria.
- Health care should not be denied or limited because a person with disability requires reasonable accommodation or adjustment.
- Health care should be provided on the basis of free and informed consent of the person with disability.
- Health care should not be denied or limited based on quality of life judgements about the person with disability.
- Ethical decision-making frameworks should be designed with close consultation and active involvement of people with disability and their representative organisations.